Arizona families navigating Prader-Willi syndrome together.
Prader-Willi Syndrome Arizona Association (PWSAA) is the Arizona chapter of PWSA | USA. We aim to support Arizona families affected by Prader-Willi syndrome through advocacy efforts, providing state-specific information and hosting events to bring our Arizona families together. Collectively we have the power to increase acceptance, understanding and quality of care for individuals living with Prader-Willi syndrome in Arizona. Thank you for joining us!
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New Diagnosis
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State Benefits
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Provider Directory
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Events
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Activities
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Adult Living
Get support, give support, build community.
Virtual monthly meeting open to parents / guardians of individuals with PWS of all ages.
Make a donation.
Prader-Willi Syndrome Arizona Association is 100% volunteer and donation driven. Your generosity helps us provide information, educational opportunities and support to those living with Prader-Willi syndrome in Arizona and their families. Thank you!
“Breathe... then become that advocate for your child. Celebrate their wins and enjoy your child. We sometimes get so obsessed about the diagnosis of PWS that we forget to just be mom and dad.”
— PWS mom
“Find an in-person community or online community and ask lots of questions. No one will be in your exact situation, but we can all learn from each other.”
— PWS mom
“This group has been a blessing since I found them on Facebook and just to be able to share an afternoon with other parents who understand our daily life meant the world to us.”