Upcoming Events
PWS Parent Support Group
This monthly virtual meeting is open to parents / primary caregivers of individuals with PWS of all ages.
PWS Parent Support Group
Get support, give support, build community. This group is open to parents / primary caregivers of individuals with PWS of all ages.
The Life You're Given screening
Join us in downtown Tucson for a special screening of the new PWS documentary, The Life You’re Given. Live Q&A with the filmmakers after the show. Virtual attendance is also an option! Suggested $10 donation to PWSAA or pay what you can. Watch the movie trailer here. An invite with a zoom link will be sent to ticket holders before the show. Reserve your tickets here.
PWS Family Park Gathering
Join us for a casual PWS family and friends park hangout in Mesa. We will meet at Ramada #1. Look for our sign and cool kids. Bring your own snack/lunch if needed. We hope to see you!
PWS Family Trunk or Treat
Join us for a spooktacular (and PWS safe) Trunk or Treat event! Deck out your cars and hand out non-food treats (such as stickers, small toys, bubbles, etc.) to our boys and ghouls! We'll also have fun Halloween crafts for the kids. It's sure to be a wicked good time.
We will meet at the Pinnacle West Equestrian Center parking lot at 3701 E Pinnacle Peak Rd. Phoenix, AZ 85050. Event is from 5pm to 7pm, although you are welcome to come anytime after 4pm for set up. Undecorated cars will have a separate parking area. Thank you for your participation in helping create a PWS-inclusive trick-or-treating environment. Costumes welcome!
PWS Family Gathering
Immediately following the DDD meeting at Children’s Clinics, we will gather at the nearby McGann residence (2 miles away). There will be healthy snack plates served and a crafting activity for the kids. Bring your suits if you care to hang on the deck and take a dip in the stock tank pool. We hope you can make it!
DDD Meeting for PWS
This is an in-person meeting in Tucson at Children’s Clinics Flo Manning building with key staff from the Division of Developmental Disabilities (DDD). The meeting will begin with a short presentation by DDD on eligibility requirements and available services. It will then open up to questions and discussion where they want to hear from us, the Arizona PWS community, about how to better meet the needs of their members with PWS. There is also a virtual component to this meeting, although we do encourage in-person attendance if at all possible. We are asking everyone (whether you are able to attend or not) to please RSVP and answer a few short questions so we may best represent our entire community and make the meeting a success. Thank you!
PWSA | USA National Convention
PWSA | USA’s 37th National Convention will take place on June 21 – June 24, 2023, in Orlando, Florida at the Hilton Orlando Buena Vista Palace! Parents, grandparents, siblings, and individuals with Prader-Willi syndrome (PWS) will come together to experience this transformational conference of HOPE. Throughout the convention, attendees will hear from physicians, educators, professional care providers, and scientific researchers, who will share the latest information and advances in the care and support of individuals with PWS. While caregivers are attending conference sessions, children and adults with PWS and their siblings, will participate in two fun-filled days of activities and building relationships with peers.
FPWR Annual Family Conference
FPWR's 2022 Family Conference will be held September 30th and October 1st at Convene in Chicago, IL.
The two-day conference is a powerful experience combining education, networking, and community-building. Learn the latest in PWS research from experts in the field and have the opportunity to engage one-on-one with the researchers that have a deep interest in finding treatments for our loved ones with PWS.
Our conference has something every parent traveling this PWS journey. From our special New Parents Session (0-2 yrs) to the Clinical Trials Panel to clinician presentations tailored for your child's needs, you won't want to miss all the FPWR conference has to offer!
Hannah Wilkinson Celebration of Life
On behalf of PWSA Arizona, we extend our deepest condolences to the family of Hannah Wilkinson. Hannah was always a bright soul who lit up the room anytime she was around friends, family and others who struggle with PWS. She will always be remembered for her bright smile and caring nature. Please keep her mom Tonya Imholt and her siblings in your thoughts at this time.