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PWSAA board members will be flying into Washington, D.C. to meet other PWS families around the country for a day of advocacy and lobbying for PWS on the national level. On the agenda is a request to designate May 15th Prader-Willi Syndrome Awareness Day, to speak in favor of bill HR 8641 Orphan Drug COVID-19 Mitigation Act and a request to add PWS as a topic area to the CDMRP-PRMRP (Congressionally Directed Medical Research Program - Peer Reviewed Medical Research Program). See the links below for more information on these important initiatives and how they would affect our community.